Implications of tofersen for everyone with ALS
Implications of tofersen for everyone with ALS Tuesday, May 2, 2023 4:45 PM ET The FDA’s recent decision to approve tofersen offers direct benefit to people living with SOD1 […]
Free
12 events found.
Education
ALS Clinic Community and Research Day 2023
Please join us for this year's ALS Clinic Community and Research Day on Saturday, May 6th, 2023 1:00 - 4:00 PM EST. Charlestown Navy Yard 114 16th Street, Building 114, Room D1 […]
Evidence-Based Consensus Guidelines for Genetic Counseling and Testing in ALS
About the Program: The practice of genetic testing in ALS has been impacted by high patient demand for testing, sponsored testing programs, and a new drug application to the FDA for […]
Free
Calling All First Responders: Come Learn About ALS
When an emergency strikes, we want you, our first responders, on the scene. But when that emergency involves someone living with ALS, things can be more complicated. The best way […]
Free
What’s in a gene? And introduction to Familial ALS
An ALS diagnosis often comes out of nowhere. Most people do not even know what ALS is until they are diagnosed with it. Unfortunately, there are families where ALS is […]
Free