Education
Surviving and thriving through the Holidays with ALS
VirtualAbout the Program: Join us for our December Learning Series with Dr. Suzana K.E. Makowski, medical director of Compassionate Care ALS. Dr. Makowski will discuss spirituality and its role in […]
EAPs in ALS: What Have We Learned, Where Do We Go from Here
VirtualWednesday, January 15th 2025 1:00 PM - 2:00 PM ET In this webinar, Drs. Andrews, Babu and Bedlack will explain what Expanded Access Programs (EAPs) are and how they differ […]
NEALS Webinar: Annual Update from the Co-Chairs
VirtualTuesday, January 21, 2025 11:00 AM - 12:00 PM ET Join us for a NEALS webinar featuring an overview of 2024 milestones, key updates, and plans for 2025. Led by […]
Special Topic: ALL ALS Community Q&A Webinar
VirtualPlease join us on Thursday, January 23rd, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the ALL ALS Consortium. Members of the ALL ALS study team will […]
Canceled Participation in the National ALS Registry
VirtualAbout the Program: ALS research depends on people living with ALS to join the National ALS Registry. Every individual’s story can contribute to our understanding of the disease, its causes, and […]
Caregivers: Angels in Agony
VirtualAbout the Program: Every caregiver — and every caregiving journey — is unique, but there are some commonalities among caregivers of family members living with ALS. Most say caregiving is at […]
Customer Experience Journey in ALS Clinical Trials
VirtualIn 2016, a "secret shopper" initiative was launched to assess the responsiveness of ALS clinical trial sites to patient inquiries. The findings revealed significant challenges in both the quality and […]
Weekly HEALEY ALS Platform Trial Webinar
VirtualJoin us on Select Thursdays at 5:00-5:30pm Eastern Time for updates on trial progress and answers to audience questions.