Education
National ALS Registry: Learn How You Can Join the Fight Against ALS.
VirtualNational ALS Registry: Learn How You Can Join the Fight Against ALS.
ALS & Relationships, Sex, and Intimacy
VirtualAbout the Program A person living with ALS may not feel comfortable addressing relationship, intimacy and sexual health changes that occur during their ALS journey with their healthcare providers. Although […]
FDA’s Rare Disease Day 2023
VirtualWe are excited to announce FDA’s Rare Disease Day will be on Monday, February 27, 2023 and registration is open for this virtual event. Dr. Robert M. Califf, Commissioner of Food and Drugs, will […]
Ask Me Anything ALS – Clinical Trials
VirtualWhile there are currently no cures for ALS, there are numerous clinical trials taking place right now across the country with a goal of finding safe and effective therapies. With […]
Clinical Trial Recruitment & Retention: A Path Forward
VirtualALS clinical trials must represent all people living with ALS including those from diverse genetic, racial/ethnic, socioeconomic, and geographical backgrounds.
In March 2022, I AM ALS hosted the inaugural I AM ALS Action Summit to engage stakeholders in the ALS community to improve the clinical trial experience for people living with ALS and their caregivers. Summit participants included people living with ALS, loved ones and caregivers, physicians, clinical research coordinators, advocacy organizations, biopharma allies, and key government stakeholders.
This webinar, which will take place on March 8th at 6pm ET, aims to inform the ALS community of the results from the Action Summit and will include an exchange of ideas around clinical trial recruitment and retention and ways in which you can get involved.
The 2023 Neurological Symposium Presented by The McCourt Foundation
Virtual or In PersonPlease join us for a FREE educational update for patients, family members, caregivers, and medical professionals. We are thrilled to be able to bring together our world-renowned partner physicians
and researchers from Mass General Hospital, Brigham & Women's Hospital, and Cedars-Sinai Hospital to share their latest research into cures and treatments for neurological diseases. Each session includes a 30-minute presentation and one hour Q&A. This in-person event is FREE and OPEN to all and will also be live-streamed for a wider geographical reach. Bring your questions, and join us for one, two or three sessions! Breakfast and lunch will be provided.
American Brain Coalition’s educational series: Regulatory 101
Federal agencies provide an important forum for the brain community to connect with policymakers and officials, including in support of efforts to deliver safe and effective treatments for brain conditions. […]