Join us to hear Dr. Fernando Vieira, CEO and CSO of the ALS Therapy Development Institute, and Dr. Richard Bedlack, Director of the Duke ALS Clinic, share the latest findings from the IGFBP7 ARC Study. This is a rare opportunity to gain insights into cutting-edge research and have your questions answered by two of the […]
Don't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness the power of citizen research to make a lasting impact on the future of ALS treatments and support.
Title: Stitching Strength: What I have learned about hope in ALS and how I am trying to weave that into my practice Speaker: Dr. Richard Bedlack Date: Thursday, November 14, 2024, at 10 am CST Link to register: https://us02web.zoom.us/webinar/register/WN_vs8Q-VTUSTGCd0r5XmWiaQ About the Program: Join us for our November ALS Learning Series about hope with Dr. Richard Bedlack. In […]
Join this webinar to explore innovative, multidisciplinary approaches in disease modeling, drug testing, and tissue engineering using advanced in vitro systems. Dr. Francesco Saverio Tedesco will present cutting-edge examples, including the development of advanced muscle models for studying muscular dystrophies and designing more efficient, targeted therapies for neuromuscular diseases. Attendees will also gain insight into […]
Shifting the PARADIGM: PrimeC, an Oral Candidate for ALS, Demonstrates Safety, Efficacy, and Target Engagement Biomarkers in a Phase 2b Trial Don't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness the power of citizen […]
Register to hear the personal accounts of life with ALS and treatment with RADICAVA ORS® (edaravone) from 2 people living with ALS. Moderated by an ALS advocate and volunteer, join these panelists as they share their personal advice and perspectives on navigating their journeys with ALS. Brought to you by Mitsubishi Tanabe Pharma America. Stephanie Cantos Stephanie […]
Please join us on Thursday, November 21st, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the ALL ALS Consortium. James Berry, M.D., M.P.H., and Bob Bowser, Ph.D., will present updates about Access for All in ALS (ALL ALS), share ways to stay connected to news in ALS research, and answer questions from […]
These webinars aim to inform and answer participant questions on the NINDS Amyotrophic Lateral Sclerosis (ALS) Intermediate Patient Population Expanded Access (U01 Clinical Trial Required) RFA# TBD. The goal of this announcement is to support the conduct of scientific research utilizing data from expanded access (EA) for investigational drugs or biological products for patients living […]
Please join us as we welcome Dr. Marjan Sepassi, Vice President of Medical Affairs at Clene Nanomedicine, for our next Expert Talk webinar. Dr. Sepassi will be discussing CNM-Au8 long-term evidence and providing an EAP Program update.
Advanced methods of machine learning have paved the way for a new generation of medical and clinical research. New methods and data resources can offer better diagnostics, new therapeutics, and disease management. Conditions such as ALS are uniquely suited to benefit from these strategies, but there are important considerations. From the basics of what makes […]
People with ALS can experience emotional distress and mood-related issues such as depression, a decline in quality of life, and feelings of hopelessness and helplessness, known as existential distress. There are few therapies that currently treat these symptoms in a significant or sustained way, and those that do often have unwanted side effects and limited […]
