Education
EAPs in ALS: What Have We Learned, Where Do We Go from Here
VirtualWednesday, January 15th 2025 1:00 PM - 2:00 PM ET In this webinar, Drs. Andrews, Babu and Bedlack will explain what Expanded Access Programs (EAPs) are and how they differ […]
NEALS Webinar: Annual Update from the Co-Chairs
VirtualTuesday, January 21, 2025 11:00 AM - 12:00 PM ET Join us for a NEALS webinar featuring an overview of 2024 milestones, key updates, and plans for 2025. Led by […]
Special Topic: ALL ALS Community Q&A Webinar
VirtualPlease join us on Thursday, January 23rd, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the ALL ALS Consortium. Members of the ALL ALS study team will […]
Canceled Participation in the National ALS Registry
VirtualAbout the Program: ALS research depends on people living with ALS to join the National ALS Registry. Every individual’s story can contribute to our understanding of the disease, its causes, and […]
Caregivers: Angels in Agony
VirtualAbout the Program: Every caregiver — and every caregiving journey — is unique, but there are some commonalities among caregivers of family members living with ALS. Most say caregiving is at […]
Customer Experience Journey in ALS Clinical Trials
VirtualIn 2016, a "secret shopper" initiative was launched to assess the responsiveness of ALS clinical trial sites to patient inquiries. The findings revealed significant challenges in both the quality and […]
Weekly HEALEY ALS Platform Trial Webinar
VirtualJoin us on Select Thursdays at 5:00-5:30pm Eastern Time for updates on trial progress and answers to audience questions.
The Importance and Impact of Life Planning Documents
Virtual“I don’t want to talk about it.” “Not today.” Talking about dying is difficult. It’s a conversation many of us avoid, postpone, or put off—sometimes until it’s too late. But having […]