Navigating Advanced Directives
VirtualAbout the talk: Advanced directives are legal documents that provide instructions for medical care. When living with ALS, it is important to think ahead about what kind of care you may […]
Free
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Education
ALS Town Hall: Discover Roon – Your Ultimate ALS Resource
VirtualDiscover Roon: Your Ultimate ALS Resource for Answers to All Your Questions: Wednesday, April 17, 2024 | 3:00 - 4:00pm EDT Join us on April 17, 2024 for an ALS […]
Mental Health In ALS/MND
VirtualApril 24, 2024 9:00 AM Eastern Time (US and Canada) This webinar will provide tools and recommendations for People living with ALS/MND, their caregivers and youth. We will learn how […]
Free
Constipation in People Living with ALS: Does Autonomic Dysfunction Play A Role?
VirtualJoin us for an insightful session with Dr. Ghazala Hayat, MD, FAAN, FANA, FAANEM, as we delve into the prevalence and challenges of constipation in people living with ALS. Dr. […]
BLOWING UP THE PIPELINE: Stories from the frontlines of the ALS Revolution
VirtualDon't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness […]
Free
Working to End ALS, Hosted by the Congressional ALS Caucus
Virtual or In PersonHoping to live stream on Mike Quigley's YouTube Channel https://www.youtube.com/@RepMikeQuigley
NEALS Webinar: An Overview of The ALS Better Care Act
VirtualJoin Dr. Terry Heiman-Patterson, Dr. Sabrina Paganoni, and Dr. Kelly Gwathmey's discussion of the importance of multidisciplinary care and the role of the ALS Better Care Act to ensure that […]
Free
I AM ALS: Clinical Trials 101
VirtualWhat: Clinical Trials 101 When: May 9, 2024 6pm ET Where: Zoom I AM ALS’ Clinical Trial Community team will be hosting a monthly webinar series to increase people’s understanding of clinical trials […]
Free
Expanded Access 101
VirtualExpanded Access 101 - Presented by the Working Group on Compassionate Use & Preapproval Access (CUPA) Date & Time May 15, 2024 12:00 PM Description Our annual introductory webinar covering […]
Free
Brain Computer Interface (BCI) Trails in ALS
VirtualDon't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness […]
Free
Access for ALL in ALS (ALL ALS) Consortium
VirtualNational Institutes of Health (NIH) funded “ALL ALS” consortium is a multi-institutional effort that aims to organize the ALS clinical research landscape in the US. ALL ALS is operating in […]
Free