Genetic ALS / FTD Research Education Series: Focus on C9orf72
VirtualAbout the event Around 140,000 or more healthy people in the United States have C9orf72 repeat expansions, a few thousand more with a current ALS or FTD diagnosis - what […]
12 events found.
Education
A conversation with a genetic counselor: Could the ALS in my family be genetic?
About the Presentation: Navigating ALS care can be complicated and filled with many complex decisions, including whether genetic testing is right for you. Join us for a discussion with genetic […]
Genetic ALS / FTD Research Education Series: Focus on Progranulin (GRN)
VirtualAbout the event Up to 50,000 healthy people in the United States have pathogenic GRN variants, and about one thousand more have an active FTD diagnosis - what research is […]
How to Slow ALS Progression
ZoomJoin the call early! The speaker will start promptly at 4:00 PM PST. The meeting room will be open at 3:30 PM PST. Questions for our Speakers? If you have […]
Free
Weekly HEALEY ALS Platform Trial Webinar
VirtualAs part of our weekly webinar series, we will be dedicating the second Thursday of each month to a discussion about Expanded Access and EAPs. Please join us on Thursday, February […]
Free
Bridging the Gap: The Crucial Role of Collaborative Pre-Clinical Research
VirtualTuesday, February 13, 2024 4:00 - 5:00 PM ET Please join us for a conversation with Dr. Christine Vande Velde (Robert Packard Center for ALS Research), Erin Fleming (Project ALS), […]
Free
A Comprehensive & Integrative Medicine Approach to ALS
VirtualSpeaker Series: A Comprehensive & Integrative Medicine Approach to ALS Sunday, Feb. 18, 2024, 1:00 - 2:00 pm ET Presented by Shelena C. Lalji, M.D., F.A.C.O.G. Functional Medicine Physician, […]
Free
2024 ALS Reversals Update
ZoomJoin the call early! The speaker will start promptly at 4:00 PM PST. The meeting room will be open at 3:30 PM PST. Questions for our Speakers? If you have […]
Free
Weekly HEALEY ALS Platform Trial Webinar
VirtualThursday, February 22nd, 5:00 pm EST: Genetics Discussion with Dr. Mark Garret (Mass General Hospital) Mark Garret, MD Dr. Garret is a neurologist and researcher at the Sean M. Healey & […]
Free
Unveiling the ALS Trial Navigator – Empowering Your Trial Search
VirtualUnveiling the ALS Trial Navigator - Empowering Your Trial Search Watch a live demo of this innovative platform and get your questions answered! Tuesday, February 27, 2024 | 3:00 - […]
Free
The Benefits of Macronutrients in Patients with ALS: What Should We Eat?
VirtualDr. Ikjae Lee, from the Eleanor and Lou Gehrig ALS Center at Columbia University, will present a summary of literature on the intake of various macronutrients and their impact on […]
Free
Families with ALS
ZoomJoin the call early! The speaker will start promptly at 4:00 PM PST. The meeting room will be open at 3:30 PM PST. Questions for our Speakers? If you have […]
Free