Receiving an ALS diagnosis is devastating for many reasons, including the knowledge that with a progressive loss of function will potentially come the loss of employment and much-loved activities. This […]
One of the most common comments we hear is how hard it is to maintain friendships once someone is diagnosed with ALS. Join us to hear examples of friends who are making the best of a bad situation, examples of how to support a friend with ALS, and how people with ALS can continue to support their support squad!
National ALS Registry: Learn How You Can Join the Fight Against ALS.
About the Program A person living with ALS may not feel comfortable addressing relationship, intimacy and sexual health changes that occur during their ALS journey with their healthcare providers. Although […]
We are excited to announce FDA’s Rare Disease Day will be on Monday, February 27, 2023 and registration is open for this virtual event. Dr. Robert M. Califf, Commissioner of Food and Drugs, will […]
While there are currently no cures for ALS, there are numerous clinical trials taking place right now across the country with a goal of finding safe and effective therapies. With […]
