Education
Why Your Participation in the National ALS Registry Matters
VirtualAbout the Program: Join us for our January ALS Learning series with Dr. Paul Mehta to learn how the National ALS Registry helps advance research. Dr. Mehta will discuss how […]
Pat’s Maps
VirtualYou’ve heard of advocating for ALS, you’ve heard of organizing for ALS, but have you ever heard of…mapping it? That’s right, I said mapping! He has created many maps for […]
What Do I Need to Know About Clinical Trials?
VirtualLearn about the importance of clinical trials, how to find a suitable clinical trial, and what to consider if you want to take part and next steps. Moderated by Rachael […]
Weekly HEALEY ALS Platform Trial Webinar
VirtualWeekly Q&A with guest speaker Jonathan Katz, MD, Site Investigator at CPMC
Instagram 101
VirtualThey say a picture is worth a thousand words, which means pictures are pretty powerful. Would you like to harness the power of photos and videos to help enhance your […]
Ask Me Anything ALS – Feeding Tubes/Nutrition
VirtualAs ALS progresses, eating and drinking can become difficult, which can often lead to discussions about feeding tubes. The decision to get a feeding tube is a personal one. There […]