Education

These webinars aim to inform and answer participant questions on the NINDS Amyotrophic Lateral Sclerosis (ALS) Intermediate Patient Population Expanded Access (U01 Clinical Trial Required) RFA# TBD. The goal of this announcement is to support the conduct of scientific research utilizing data from expanded access (EA) for investigational drugs or biological products for patients living […]

Advanced methods of machine learning have paved the way for a new generation of medical and clinical research. New methods and data resources can offer better diagnostics, new therapeutics, and disease management. Conditions such as ALS are uniquely suited to benefit from these strategies, but there are important considerations. From the basics of what makes […]

People with ALS can experience emotional distress and mood-related issues such as depression, a decline in quality of life, and feelings of hopelessness and helplessness, known as existential distress. There are few therapies that currently treat these symptoms in a significant or sustained way, and those that do often have unwanted side effects and limited […]

About the Program: Join us for our December Learning Series with Dr. Suzana K.E. Makowski, medical director of Compassionate Care ALS.  Dr. Makowski will discuss spirituality and its role in ALS, along with where we can find light in the darkness and gratitude as we enter a new season and new year. The Les Turner ALS […]