Education
Calendar of Events
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Ask Me Anything ALS – Feeding Tubes/Nutrition
Ask Me Anything ALS – Feeding Tubes/Nutrition
As ALS progresses, eating and drinking can become difficult, which can often lead to discussions about feeding tubes. The decision to get a feeding tube is a personal one. There are advantages and disadvantages that must be taken into account when considering a feeding tube. It can be helpful to hear from those who have […]
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I AM ALS Town Hall on Synapticure
I AM ALS Town Hall on Synapticure
Gather around, good people! I AM ALS is hosting a Town Hall on Thursday, February 2nd at 5 pm, ET! Brian, Sandra, and I AM ALS’s board will give a presentation on Synapticure, how I AM ALS has taken steps to create an Independent Committee for any matters related to Synapticure, and, of course, answer […]
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Let’s Talk About It: Bringing Life into Living with ALS/PLS
Let’s Talk About It: Bringing Life into Living with ALS/PLS
Receiving an ALS diagnosis is devastating for many reasons, including the knowledge that with a progressive loss of function will potentially come the loss of employment and much-loved activities. This is why the Many Shades of ALS (MSOA) team here at I AM ALS wants to talk to you about a powerful antidote to the […]
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Town Hall: Friendships and ALS
Town Hall: Friendships and ALS
One of the most common comments we hear is how hard it is to maintain friendships once someone is diagnosed with ALS. Join us to hear examples of friends who are making the best of a bad situation, examples of how to support a friend with ALS, and how people with ALS can continue to support their support squad!
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National ALS Registry: Learn How You Can Join the Fight Against ALS.
National ALS Registry: Learn How You Can Join the Fight Against ALS.
National ALS Registry: Learn How You Can Join the Fight Against ALS.
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ALS & Relationships, Sex, and Intimacy
ALS & Relationships, Sex, and Intimacy
About the Program A person living with ALS may not feel comfortable addressing relationship, intimacy and sexual health changes that occur during their ALS journey with their healthcare providers. Although their ALS care team is always there to help, they may not feel fully equipped to assist them. The good news is that there are […]
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FDA’s Rare Disease Day 2023
We are excited to announce FDA’s Rare Disease Day will be on Monday, February 27, 2023 and registration is open for this virtual event. Dr. Robert M. Califf, Commissioner of Food and Drugs, will provide opening remarks to kick off an impactful event for the rare disease community. This year’s theme is “Intersections with Rare Diseases – A patient […]
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Ask Me Anything ALS – Clinical Trials
Ask Me Anything ALS – Clinical Trials
While there are currently no cures for ALS, there are numerous clinical trials taking place right now across the country with a goal of finding safe and effective therapies. With the many opportunities available, finding the right fit and participating in a clinical trial can be overwhelming and confusing. You and your loved one may […]