This calendar includes events of interest to people living with and impacted by ALS. If you would like to submit an event for consideration, please use this submission form.Unfortunately, we cannot post fundraisers for individuals.
About the Program: In this talk Dr. Berry will discuss the aims, design considerations, and implementation of observational studies, highlighting the many ways observational studies hastened drug development and can […]
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who […]
The Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to […]
The Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by […]
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who […]
The Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join.
The Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop […]
Don't miss this opportunity to hear directly from leading experts, and ask them your questions, as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research […]
The Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living […]
The Write Stuff Team seeks to empower and embrace all perspectives as they share their stories through writing with the intent of educating others and raising awareness of ALS both […]
This webinar provides a behind-the-scenes look at how ALS/MND specialists are trained to approach difficult conversations and decisions in a compassionate, patient-centered way. While designed specifically for clinicians, this session […]
Humor – it can help us reframe difficult situations, give space to release pent up energy, and is almost always a balm for the soul. I AM ALS is offering […]
The Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding […]
REGISTRATION is open for our annual Polar Plunge! We'll be at it (or IN IT) again at Rexhame Beach in Marshfield, MA on 4/5/25 - or, you're welcome to plunge […]
Radisson Blu Aqua Hotel, Chicago Saturday, April 5 The Hope Through Caring Gala brings together the top minds in ALS research and care, advocacy, industry, and, most importantly, people living with ALS […]
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who […]
The Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to […]
The Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by […]
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who […]
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who […]
The Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join.
The Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop […]
The Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living […]
The Write Stuff Team seeks to empower and embrace all perspectives as they share their stories through writing with the intent of educating others and raising awareness of ALS both […]
Humor – it can help us reframe difficult situations, give space to release pent up energy, and is almost always a balm for the soul. I AM ALS is offering […]
The Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding […]
Join us on Select Thursdays at 5:00-5:30pm Eastern Time for updates on trial progress and answers to audience questions.
Founded in 2016, the TShawStrong Golf Invitational (Celebrity Golf Classic for 2025) brings together Tim Shaw’s love for golf and his commitment to finding a cure for ALS. The event’s […]
The Veterans team seeks to raise awareness about veteran-specific ALS issues, educate the public about ALS and veterans, connect veterans with resources to improve their quality of ALS care, and […]
Join us on Monday, April 14th at 7pm ET for an important discussion with staff from the ALS clinic at Georgetown University about ALS clinical trial participation. We will explore both […]
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who […]
Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be […]
The Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to […]
Join us for the 2025 I AM ALS Social Hours! Enjoy a fun and relaxed atmosphere where you can connect with members of the IAA community. Once you’ve signed up […]
The Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by […]
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who […]
The Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join.
Don't miss this opportunity to hear directly from leading experts, and ask them your questions, as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research […]
The Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop […]
Don't miss this opportunity to hear directly from leading experts, and ask them your questions, as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research […]
The Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living […]
The Write Stuff Team seeks to empower and embrace all perspectives as they share their stories through writing with the intent of educating others and raising awareness of ALS both […]
Humor – it can help us reframe difficult situations, give space to release pent up energy, and is almost always a balm for the soul. I AM ALS is offering […]
The Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding […]
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being […]
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being […]
Chicagoland: Third Saturday | 10:30 am - 12:00 pm Video Call-In: zoom.us/j/422596742 Call-In: 312-626-6799, Meeting ID: 422596742 For more information or to RSVP: audrey@alsachicago.org
To honor Christian Yelich of the Brewers as the team's Lou Gehrig Memorial Award nominee, representatives from the ALS Community will join the game against the A's on April 19, […]
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who […]
The Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to […]
The Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by […]
The Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join.
The Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop […]
The Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living […]
The Write Stuff Team seeks to empower and embrace all perspectives as they share their stories through writing with the intent of educating others and raising awareness of ALS both […]
Humor – it can help us reframe difficult situations, give space to release pent up energy, and is almost always a balm for the soul. I AM ALS is offering […]
The ALS Exposome: How Environmental Exposures Inform Disease Risk and Prevention Join us for our April ALS Learning Series with Dr. Goutman, a neurologist from the University of Michigan. Dr. Goutman will discuss research related to how […]
The Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding […]
Join us on Select Thursdays at 5:00-5:30pm Eastern Time for updates on trial progress and answers to audience questions.
The Veterans team seeks to raise awareness about veteran-specific ALS issues, educate the public about ALS and veterans, connect veterans with resources to improve their quality of ALS care, and […]
An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to […]
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who […]
The Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to […]
Discover the Power of Your EHR Data in ALS Research. Join Dr. Danielle Boyce for a Town Hall to learn how ALS TDI's ARC Study is using electronic health records (EHRs) to drive […]
The Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by […]
The Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join.
Don't miss this opportunity to hear directly from leading experts, and ask them your questions, as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research […]
The Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop […]
The Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living […]
The Write Stuff Team seeks to empower and embrace all perspectives as they share their stories through writing with the intent of educating others and raising awareness of ALS both […]
Humor – it can help us reframe difficult situations, give space to release pent up energy, and is almost always a balm for the soul. I AM ALS is offering […]
The Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding […]
The Goshen Public Library is hosting an event in collaboration with I AM ALS on May 1, 2025, at 6:00 PM EST. This event is dedicated to raising awareness of […]
A 5k and 1k Kids Fun Run benefiting the ALS Research Team at Vanderbilt University Medical Center and the Sandra West ALS Foundation. The race was established in 2024 by […]