Thank You Squad
When: Thursdays 2-2:30 ET
Co-Chairs: Maurine Tombrello (lost and has a friend with ALS), Abby Corsun Sims (an ALS advocate with no connection to ALS)
Mission Statement: To cultivate relationships and add a personalized touch through individual donor outreach.
What do we do: To ensure I AM ALS donors are being thanked, stewarded and recognized for their generosity and for pushing ALS research forward, quickly.
Goal:
- Appropriately thank donors
- Recognize the work and important moments in the lives of the I AM ALS core community
Accomplishments:
- Sent over 11,500 thank you notes to over 22 different countries! (Since the team was founded in 2019)
- Sent thank you notes to every legislator who cosponsored ACT for ALS
- Sent thank you notes to every legislator who voted for ACT for ALS
What are we working on:
- Sending handwritten thank you cards to every single I AM ALS donor
- Continuing to thank donors and those who make a difference
Chair
a friend of someone we've lost to ALS
an ALS advocate with no connection to ALS
Scribe
a loved one of someone we've lost to ALS, ALS advocate
Team Members
a family member in a familial ALS family, an ALS gene carrier
an ALS advocate with no connection to ALS
a family member of someone we've lost to ALS,
someone who cared for a person we've lost to ALS
an ALS advocate with no connection to ALS
a family member of someone we've lost to ALS,
someone who cared for a person we've lost to ALS
a friend of someone living with ALS
a family member of someone we've lost to ALS
a family member of someone we've lost to ALS
a friend of someone we've lost to ALS,
caring for someone living with ALS
a friend of someone we've lost to ALS
a family member of someone we've lost to ALS
a family member of someone we've lost to ALS
an ALS advocate with no connection to ALS
daughter of someone living with ALS, caring for someone living with ALS