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Welcome to the Revolution
Thanks for visiting, change maker: Together we raise awareness, increase ALS research funding, pass legislation and beyond. We rewrite the ALS story.
335832 Bold actions have been taken so far
How much change will you make to find cures for ALS?
Engagement Level 1
Veterans! Share your story about caregiving.
Be a part of the Yankees’ Lou Gehrig Day!
#Fight2EndALS campaign-Cristy’s Story
Tweet at your Senators to pass S. 326, incorporating the Elizabeth Dole Home Care Act
Build Congressional Champions Through the ALS Caucus
Test Your ALS Knowledge
Engagement Level 2
Clinical Trials Webinar 2: ALS Clinical Trial Overview
#Fight2EndALS campaign-Lanie’s Story
#Fight2EndALS Campaign-Kristen’s Story
Help support for an increase in ALS funding
BENEFIT Act of 2023
Protect South Carolinians from Genetic Discrimination! Pass H. 4218: Genetic Protection!
Engagement Level 3
#Fight2EndALS campaign-Gary’s Story
#Fight2EndALS campaign-Juan’s Story
Leanne’s Story
Rebecca’s Story
Elin’s Story
Youth Lou Gehrig Day Team
Engagement Level 4
ALS Better Care Act
Firefighter- Michelle’s Story
The Write Stuff Team
Lou Gehrig Day Team
ALS Veteran Champion Award
Build Congressional Champions Through the ALS Caucus
Engagement Level 5
#Fight2EndALS campaign-Katie’s Story
Be a part of the Washington Nationals’ Lou Gehrig Day!
Become a Volunteer!
Visit Your Representative’s Home Office or Set Up a Virtual Meeting
Visit Your Senators’ Home Office or Set Up a Virtual Meeting
100,000 heroes in our advocate network.
Millions more talking about ALS.
Over 51,000 actions taken to push forward innovative ALS policy.
$55 million increase in federal funding for ALS research.
ALS impacts every community, including yours.
Today, I may be fighting for my life. But I know I’m not alone. I have my family of service members, I have patients and veterans living with ALS, and I now have you.
Guillermo “Gill” Garcia
a U.S. military veteran living with ALS, living with ALS
Looking for more ways to get involved?
Join one of our teams led by people living with ALS, caregivers and advocates who are making the impossible possible every day.
Clinical Trials
The Clinical Trials Team works directly with researchers, government agencies and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. They collect and distribute information regarding clinical trials and the latest research to the ALS community, through ALS Signal.
Community Outreach
The Community Outreach Team engages, educates and empowers ourselves and others for the purpose of creating better care, treatments and cures for ALS.
Familial ALS
The Familial ALS Team raises awareness of familial ALS and empowers, supports and advocates for potential and actual ALS gene holders and their families.
Legislative Affairs
The Legislative Affairs Team engages and creates more advocates in order to secure federal funding and change public policy to accelerate ALS treatments and cures and support those living with ALS and their loved ones.
Thank You Squad
The Thank You Squad cultivates relationships and adds a personalized touch through individual donor outreach.
Veterans
The Veterans Affairs Team raises awareness for veteran-specific ALS issues and connects veterans with resources to improve their quality of ALS care.
Join us in rewriting the ALS story. Learn about actions you can take through your inbox.
We need you to end ALS. By signing up for I AM ALS updates, you will stay informed and empowered with the latest I AM ALS resources and actions. Welcome to the revolution!