My story is just beginning. I just found out my youngest daughter who 36 years old with a bright spirit has ALS and I don’t know what I’m in for. I know as of now I’m devastated I can’t imagine how she feels. It just came on overnight. She had some signs but we didn’t know it was ALS beginnings. Now she also has scoliosis and other things along with her ALS she’s bent over and cannot straighten out to the point where she can touch your toes and doesn’t need to bend that’s how bent over she is.

I need help. I need someone to tell me what she’s in for what I’m in for. As being her mother and she being my baby girl and the closest of all of my children to me I can’t even wrap my head around what she’s going through. I googled ALS and read about it and was petrified at what I read these poor people that I see with ALS it’s a debilitating horrible disease. We need to find a cure I need to find out what I can do to put a foot forward to help out the organization of ALS. Please give me directions this is the beginning but I hope it’s not the end. Please direct me to where I need to go to help to raise money for ALS suggestions for what I can do for my daughter.

I need a support group I cry continuously when I’m not around her and when I’m around for my heart just breaks my heart breaks all the time but when I see her condition from one day to the next it’s just so heart wrenching. Am I making a mistake in my jumping to conclusions is my heart being so torn wrong how am I supposed to feel? Am I feeling when I’m supposed to feel am I going through what I’m supposed to go through as well as her. I sound selfish because I’m talking about me basically and what I can do to help this poor girl out who’s in so much pain her muscles just spaz and she’s afraid she’s going to stay like that.

Where’s the best place I can take her for the best help? I have so many questions I don’t know where to go but here. And I’m hope I can’t get the help I need for her and the support group for myself because I need to be and talk to people who are going through exactly what I’m going through or have gone through what I’m going through to tell me what I need to know to what I’m going to have to look forward to. I try to stay so positive around her but it’s so hard when you see her deliberating disease just happen overnight. Is that how it happens? What am I going to do to help out. I need direction please for her and for I and her husband and her children she is very young children five and all for boys and her last one was a girl what she wanted a girl so bad so she can watch her walk down the aisle will she get to that point? Please help my mother was a 36-year-old daughter with ALS my prayers go out to all God bless Sharon