About The Cures Collective

The World Health Organization estimates that neurodegenerative diseases will be the second leading cause of death in developed countries by 2040. With awareness as an opportunity at the forefront of need, we can only address these barriers with collaboration across both the ALS and full neurodegenerative ecosystem.

I AM ALS launched the Cures Collective, an ALS and neurodegenerative disease coalition to identify gaps, reduce duplication, increase effectiveness, and unlock critical breakthroughs by uniting advocates and organizations that are committed to ending neurodegenerative diseases (NDs). The Collective brings together the neurodegenerative disease communities to strengthen our voices; achieve shared goals in research, access, equity, and more; promote each other’s resources; and reduce silos.

The goal of the Cures Collective is to unify the neurodegenerative disease field, accelerate finding treatments and cures, and increase and improve access to care through intentional collaboration, and sustained public awareness and mobilization.

Steering Committee

While I AM ALS is the convener, we know we are stronger with partners and founded this Collective with leading advocates and organizations in ALS, FTD, Huntington’s, Parkinson’s, and Alzheimer’s. Representatives from these disease areas will also make up the steering committee. The inaugural steering committee members include the Hummingbird Fund, Les Turner ALS Foundation, PD Avengers, Hop On A Cure, I AM ALS, Dr. Jinsy Andrews, Jenny Fortner and Sharon Hall.

Cures Collective Members:

• Sharon Hall
• Solving MS
• Special Interest Group – Black Diaspora
• Synapticure
• Team Gleason
• Troy Fields
• Wanda Smith
• Your ALS Guide

Working Groups:

The Collective launched two working groups based on members’ input on priority needs across all neurodegenerative diseases.

• Public awareness and mobilization: This working group is focused on increasing awareness among the public and policymakers about the prevalence of neurodegenerative diseases, and the path to finding cures for ALS, FTD, Parkinson’s, MS, Alzheimer’s, and more. Members are working towards a sustained public awareness and mobilization campaign.
• Patient, caregiver and community support: This working group is focused on improving the care experience and resources available to people impacted by a neurodegenerative disease. Members are fielding a survey to document and organize resources that are available for ND family caregivers and identify gaps in resources, with the goal of creating resource guides.

Thank you to our Cures Collective sponsors!