This page has everything you need to know about the I AM ALS 2024 Community Summit and related ALS Awareness Month events in Washington, DC from May 29th – June 1st.
Welcome to I AM ALS’s inaugural Community Summit and third annual DC ALS Awareness Event!
In 2024, I AM ALS will host our first ALS Community Summit. This summit will be a three-day event where ALS advocates and community organizations can meet, discuss, and learn from each other about the important issues facing the ALS community and develop tactics to address these issues. You are not going to want to miss this opportunity.
We will also host the 3rd annual ALS Awareness Month flag event. In 2022 and 2023, I AM ALS hosted the community and displayed 6,000 flags on the National Mall, honoring those living with ALS, those we have lost to ALS, and those who are ALS gene carriers. We hosted a speaking event at the flag installation where community members could tell their story and raise awareness of ALS and the actions that need to be taken. In 2023, we added coordinated meetings between advocates and legislators to ensure Congress heard the ALS community policy priorities, concerns and solutions directly from the ALS community. All of this amazing work will continue in addition to this year’s summit.
These incredible events will:
- Bring the community together for networking, connection, and support
- Engage with Congress to educate them on ALS and public policy priorities for the community
- Raise public awareness of ALS
- Offer trainings and opportunities for community members to learn from each other, influence legislative and other change in ALS, story tell, and more
- Like all I AM ALS initiatives, we could not do this without you.