Find Your Community
Learn about ways to get involved and join the I AM ALS community.
Join a Support Group
We’re putting an end to ALS. Until that day, we’re here to help.
What is ALS?
ALS can affect anyone, anywhere, at any age. Learn more.
I AM ALS advocacy has led to big wins. But we’re not done yet, and we don’t have time to waste.
ALS is expected to rise 70% worldwide by 2040. We’re on our way to finding treatments and making ALS a chronic disease, but we need your help!
Become a volunteer
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This community-led movement has already achieved incredible success, including:
Increased federal funding
for ALS by more than a billion dollars over five years.
Passing the ACT for ALS in 2021
This bipartisan legislation enables people living with ALS to access promising investigational therapies.
E. Dole Veteran Act Signed into Law in early 2025
Thanks to you, the Elizabeth Dole Home Care Act was signed into law on Jan. 2, 2025! Click to thank your Congresspeople for their support of Veterans and their caregivers.Â
Patients are getting access to promising therapies NOW because of the ACT for ALS!
The ACT for ALS was an overwhelmingly bipartisan legislation authored by Congress in partnership with the ALS community including I AM ALS, individuals living with ALS, caregivers of people with ALS, medical professionals, scientists, and collaborating organizations after they collectively raised the need for access to clinical research and advocated for an innovative solution for people with a 100% fatal disease with no cure.
Help us with the next phase of the movement as we get closer to treatments and cures.
Empowering the community in the fight against ALS
I AM ALS, a major ALS support organization is committed to offering comprehensive ALS resources. Our programs are aimed at educating the public about ALS disease, pushing for policy reforms, and assisting families afflicted by the disease. We empower patients and caregivers to become advocates, fund cutting-edge research initiatives, and build compassionate communities through peer-to-peer support and storytelling.
Navigating ALS: What To Do For ALS
If you or a loved one has been diagnosed with ALS, it is critical to understand what steps to take. I AM ALS provides information about getting medical care, joining support groups, and participating in clinical trials. Our team is here to assist you every step of the way.
Supporting Families: How to Help a Family With ALS
Caring for a loved one with ALS can be difficult. we connect individuals to local advocacy groups, emotional wellness resources, and community-led initiatives that empower caregivers and families. Through collaboration and shared experiences, we help build a supportive network so no one faces ALS alone.
Understanding Lou Gehrig’s Disease
Lou Gehrig’s disease, sometimes known as ALS, impacts many people in our community. By increasing awareness, we aim to create a supportive atmosphere for those affected and help propel research efforts toward a solution.
Heroes in our advocate network.
Increase in federal funding for ALS research.
Actions taken to push forward innovative ALS policy.
ALS impacts every community, including yours.
“Today, I may be fighting for my life. But I know I’m not alone. I have my family of service members, I have patients and veterans living with ALS, and I now have you.”
Susan's
Elizabeth's
Shirley's
Jennifer's