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For Love & Life

This powerful documentary is about I AM ALS, its inspiring co-founders Brian & Sandra, and the revolutionary movement they built.

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Tell Congress: Fund ALS Research

Help keep federal funding for ALS research a top priority this year.

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E. Dole Act for Veterans
Now a Law!

The Elizabeth Dole Home Care Act was signed into law on Jan. 2, 2025! Click to thank your Congresspeople for their support of Veterans and their caregivers. 

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Find Your Community

Learn about the many ways to get more involved with and join the I AM ALS community.

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Join a Support Group

We’re putting an end to ALS. Until that day, we’re here to help.

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What is ALS?

ALS can affect anyone, anywhere, at any age. Learn more.

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I AM ALS advocacy has led to big wins. But we’re not done yet, and we don’t have time to waste.

ALS is expected to rise 70% worldwide by 2040. We’re on our way to finding treatments and making ALS a chronic disease, but we need your help!

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This community-led movement has already achieved incredible success, including:

Increased federal funding

for ALS by more than a billion dollars over five years.

Passing the ACT for ALS in 2021

This bipartisan legislation enables people living with ALS to access promising investigational therapies.

E. Dole Veteran Act Signed into Law in early 2025

Thanks to you, the Elizabeth Dole Home Care Act was signed into law on Jan. 2, 2025! Click to thank your Congresspeople for their support of Veterans and their caregivers. 

Patients are getting access to promising therapies NOW because of the ACT for ALS!

The ACT for ALS was an overwhelmingly bipartisan legislation authored by Congress in partnership with the ALS community including I AM ALS, individuals living with ALS, caregivers of people with ALS, medical professionals, scientists, and collaborating organizations after they collectively raised the need for access to clinical research and advocated for an innovative solution for people with a 100% fatal disease with no cure.

Help us with the next phase of the movement as we get closer to treatments and cures.

Sign Up to Volunteer

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Get Connected to Support

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Take an Action to End ALS Now

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Engage Your Community

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Learn more about ALS

Heroes in our advocate network.

Increase in federal funding for ALS research.

Actions taken to push forward innovative ALS policy.

ALS impacts every community, including yours.

“Today, I may be fighting for my life. But I know I’m not alone. I have my family of service members, I have patients and veterans living with ALS, and I now have you.”

SUSAN's

Elizabeth Coccio

Elizabeth's

Shirley Downs

Shirley's

Jennifer Robb

Jennifer's

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FAQs

What is Lou Gehrig’s disease, and what does I AM ALS do?

Lou Gehrig’s disease, also known as ALS (Amyotrophic Lateral Sclerosis), is a progressive neurodegenerative disease. I AM ALS is a non-profit organization that empowers people living with ALS, supports their families, and advocates for research and policy change to improve lives and find a cure.

What services does I AM ALS offer for people with ALS?

I AM ALS provides advocacy, virtual support groups, emotional and logistical guidance, and connects families to resources and clinical trials. All support is free and tailored to individual needs

How do I know if I’ve found the best ALS disease organization?

I AM ALS is recognized for its community-driven approach, impactful advocacy, and comprehensive support. It has helped increase federal funding for ALS research and passed major legislation to improve access to treatments

Are there affordable ALS resources near me?

Yes, I AM ALS offers free resources, support groups, and guidance for people living with ALS and their families, regardless of financial situation. There is no cost to access these services

How can I help my family if someone is diagnosed with ALS?

I AM ALS provides expert advice, caregiver resources, and practical tips for supporting loved ones. You can join a support group or connect with a trained mentor for one-on-one guidance

What makes I AM ALS a leading ALS organization?

I AM ALS stands out for its community-led approach, impactful advocacy, and comprehensive support for people with ALS and their families. The organization has driven major policy wins and increased federal funding for ALS research.

How does I AM ALS support ALS advocacy in Washington, DC?

I AM ALS leads advocacy campaigns, partners with policymakers, and mobilizes the ALS community to pass legislation like the ACT for ALS and the Elizabeth Dole Home Care Act, increasing access to therapies and support for patients.

Does I AM ALS use the latest technology to support ALS families?

Yes. I AM ALS leverages digital platforms for support groups, advocacy, and information sharing, ensuring accessible and up-to-date resources for families nationwide.

What are the best practices for ALS support?

I AM ALS follows industry best practices, including evidence-based support, patient-centered care, and collaboration with leading ALS researchers and clinicians.

How do I start helping the ALS community?

You can volunteer, donate, or join an advocacy campaign through I AM ALS. Every action helps accelerate the search for a cure and supports families living with ALS.