2020 Legislative Priorities


In 2020, our legislative priorities are as aggressive as ALS is.

Legislative Priority 1

Double congressional funding for DOD ALS research from $20 to $40 million and increase NIH ALS research spending by $20 million.

Legislative Priority 2

Make real a funded expanded access program for ALS providing people living with the disease a pathway to access safe, potentially life-changing therapies ahead of FDA approval.

Legislative Priority 3

Pass the SSDI bill to eliminate the waiting period for ALS patients and their families to receive social security disability benefits.

Legislative Priority 4

Build a Congressional House ALS Caucus to 150 members strong and grow the Congressional Senate ALS Caucus to 25 members.’

Media Contact: Theresa Garner, [email protected]


We will find cures for ALS. The only question is when. That answer depends on you.

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