2020 Legislative Priorities
In 2020, our legislative priorities are as aggressive as ALS is.
Legislative Priority 1
Double congressional funding for DOD ALS research from $20 to $40 million and increase NIH ALS research spending by $20 million.
Legislative Priority 2
Make real a funded expanded access program for ALS — providing people living with the disease a pathway to access safe, potentially life-changing therapies ahead of FDA approval.
Legislative Priority 3
Pass the SSDI bill to eliminate the waiting period for ALS patients and their families to receive social security disability benefits.
Legislative Priority 4
Build a Congressional House ALS Caucus to 150 members strong and grow the Congressional Senate ALS Caucus to 25 members.’
Media Contact: Theresa Garner, [email protected]
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ALS Disability Insurance Access Act of 2019
Twenty ALS advocacy groups collaborated together to thank the more than 360 Congressional members from across the aisle who have co-sponsored H.R. 1407 and S. 578, which would extend Social Security Disability Insurance (SSDI) benefits for patients living with ALS. The ALS community is now calling on Congress for swift passage of H.R. 1407 and S. 578.
Get In. We’re Curing ALS Newsletter
Welcome to the Get in. We're Curing ALS newsletter from I AM ALS including weekly updates on what we were up to the week before, priority actions you can take to help further the movement and community happenings.
Lou Gehrig Day for MLB
Last week was filled with incredible highs and devastating lows for us. A close group of advocates — some currently battling ALS and others who have joined the fight — have been meeting weekly for the last year to push for an official Lou Gehrig Day in baseball. Our tireless efforts paid off with word that all 30 teams officially signed on to support our cause.