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I am Shaun Kalpakoff

living with ALS

California


I have learned to live well with ALS, and I am here to help everyone live their lives to the fullest!

At the age of 36 in 2017 I was diagnosed with ALS. I have a wonderful 12 year old son, and I enjoy watching him grow up. I have learned to live well with ALS, and I am here to help everyone live their lives to the fullest!

 


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Join us for the 2024 Community Summit!

Join us in Washington DC from May 29th - June 2nd for the 3rd annual ALS Awareness Month flag display and inaugural Community Summit.

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