I am Mindy

a family member in a Familial ALS Family,
a family member of someone we've lost to ALS,
an ALS gene carrier,
personally connected to another rare or neurodegenerative disease,
someone who cared for a person we've lost to ALS

California


My grandfather died of ALS and I lost my mother to it on 1/10/20. During the final year of her battle, I tested positive for carrying the C9 mutation.

My grandfather died of ALS and I lost my mother to it on 1/10/20. During the final year of her battle, I tested positive for carrying the C9 mutation. I have two teenage sons who are blissfully unaware of my genetic status. Nobody in my extended family is willing to get the genetic mutation.


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