I am Carol Mongiello
a family member of someone living with ALS
New Jersey
At 48 my son was diagnosed with rapid progression ALS. 5 years and 5 months he still fights for his life.
At 48 my son was diagnosed with rapid progression ALS. 5 years and 5 months he still fights for his life. Unable to move a single muscle now. Feeding tube, Trach, vent, etc. Thankfully today people have options, i.e. trach, vent.
Lou had none. His body was failing him and he didn’t know why. Until this day it may take months to years for a diagnosis. Lou wasn’t eligible for trials, none at that time. My son wasn’t either. Lou hit one out of the park for Frankie and the ALS community.❤️
