Show Who ALS Impacts


To be seen and known and loved is the reason we’re here. If you can’t see me, then I feel like you can’t hear me. Those touched by ALS are legacies with incredible stories. ALS is defined as a rare fatal disease. Let’s show America how much it impacts our community. Share your story and give a face to ALS in every Congressional district in this country. 

Below we’re asking for the information of those living with ALS, those we’ve lost to ALS and those who are or were the primary caregiver of an ALS patient. The address you are providing will not be shared outside of the purpose of populating the map below, and individuals will not be able to view the exact location you provide. For those we’ve lost to ALS, please enter the most recent address they’ve lived at or a landmark nearby.

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More than 1,900 people affected by ALS impacting every congressional district

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  • I am or was an ALS caregiver
  • I am living with ALS
  • Someone we've lost to ALS
  • Veteran

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If you’d like to make any modifications to the information submitted, please email [email protected].

Together our voices have power.

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