I am Elizabeth Henke
a family member of someone living with ALS
District of Columbia
Every person lucky enough to visit leaves feeling as if they’d been enveloped in a warm hug of unconditional love. That is her superpower.
Mother Fierce. My mother, Dianne, was diagnosed with ALS in July 2018. She has been in hospice at home for 2+ years and continues to defy all expectations. Her quality of life is currently very low (she is fully non-verbal and non-mobile), yet every person lucky enough to visit leaves feeling as if they’d been enveloped in a warm hug of unconditional love. That is her superpower. People gather around to celebrate her (in person and virtually) yet—even with this ALS reality—she still takes care of us.
