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I am Jeff Lester

living with ALS

Missouri


I built a full life with ALS in it. In September, I will have lived half my life with ALS.

I was diagnosed in 1993. One year later, I married my wife, Lisa. In 1995, we had our daughter, Kelsey. In December of 1997, I went on tracheal ventilation. In 2002, we welcomed our daughter, Emily, and in 2005, we added our youngest daughter, Jordan, to our beautiful family. In 2011, I graduated from the University of Michigan with two master’s degrees. In 2017, I discovered an unknown daughter, Jess, through a DNA test. In 2019, I published my memoir, Living as a Dead Man. I listed these highlights to show how I built a full life with ALS in it. In September, I will have lived half my life with ALS. Yes, there have been difficult times to overcome, but I AM ALS because I do not let ALS define who I am or how I live. Be well and happy, but most of all, live in love!


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