CBO releases much lower cost estimate for Elizabeth Dole Home Health Care Act
The Congressional Budget Office (CBO) released a new, much lower cost estimate for the Elizabeth Dole Home and Community-Based Services Act, S.141/H.R. 542. The new cost is $200 million over ten years, significantly lower than the initial score of $24 billion.
In addition, the bill now specifically recognizes ALS Veterans being eligible to exceed the existing 65% cap on home care.
This is a huge win for Veterans with ALS and everyone in the community who has been advocating for this bill, who knew the initial score was much too high and worked to correct it. We are incredibly hopeful that the new, lower cost will remove previous barriers to getting this bipartisan bill passed and signed into law.
I AM ALS will continue to advocate for the passage of the Elizabeth Dole Home Health Care Act and urges all community members to continue asking their respective U.S. Representatives and Senators to sign on as cosponsors of this important legislation using this action: https://iamals.org/action/elizabeth-dole-home-care-h-r-542-s-141/
We will find cures for ALS. The only question is when. That answer depends on you.
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I AM ALS responds to FDA Advisory Committee vote against NurOwn for the treatment of ALS
I AM ALS - an organization led for and by those living with and impacted by amyotrophic lateral sclerosis (ALS) - objects to today’s Cellular, Tissue, and Gene Therapies Advisory Committee (AdComm) vote of 17 to 1, with one member abstaining, to not recommend NurOwn be approved by the FDA for the treatment of ALS.
I AM ALS letter to FDA asking for consistency in Advisory Committee evaluation of ALS treatments
I AM ALS and members of the ALS community are disappointed that the question being posed to the Advisory Committee fails to adhere to the same pattern of flexibility recognizing the significant unmet medical need of ALS as was the case for previous Advisory Committee meetings for ALS treatments.