Updates

A Guide to Organizing Playbook

February 24, 2021

Ahead of Rare Disease Day this Sunday, Feb. 28, I AM ALS launched the Organizing Playbook, a free interactive tool. The Playbook is a step-by-step guide for those who are out to build a movement on how to empower and mobilize a community to end a disease.

Media Contact: Theresa Garner, [email protected]

We will find cures for ALS. The only question is when. That answer depends on you.

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Update on research funds – two new projects

I AM ALS is launching two new projects that will quicken the development of treatments and cures for ALS.

I AM ALS statement at NASEM ALS conference

I AM ALS joined other partners on May 18, 2023 for the National Academies of Sciences, Engineering and Medicine (NASEM) for their meeting titled "Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life."

National ALS community to hold 3-day demonstration at Washington Monument

The nonprofit patient-led movement I AM ALS is celebrating ALS Awareness Month by raising awareness about the disease and bringing all individuals and families - with a direct connection to ALS or not - into the solution.

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