Updates

A Guide to Organizing Playbook

February 24, 2021

Ahead of Rare Disease Day this Sunday, Feb. 28, I AM ALS launched the Organizing Playbook, a free interactive tool. The Playbook is a step-by-step guide for those who are out to build a movement on how to empower and mobilize a community to end a disease.

Media Contact: Theresa Garner, [email protected]

We will find cures for ALS. The only question is when. That answer depends on you.

Stay informed on I AM ALS’ progress and what you can do to help us make hope real.

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Watch the latest about I AM ALS – just featured on CBS Morning News on Sunday, November 26th!

Hummingbird Fund and I AM ALS partner to accelerate therapy approvals and access

We are thrilled to announce a new collaboration between I AM ALS and The Hummingbird Fund, a milestone towards achieving our shared mission of ending ALS through revolutionary policy advocacy.

NurOwn AdComm: What happened? What’s next?

There have been a lot of conversations about NurOwn’s Cellular, Tissue, and Gene Therapies Advisory Committee (AdComm) meeting that occurred on September 27, 2023, the subsequent Biologics License Applications (BLA) removal, and its perceived irregularities.

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