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I am Michael Robinson

living with ALS

Illinois


I was formally diagnosed on December 17th, 2015 -- and I am still here and thriving.

I am 49 years old and married almost 25 years to my amazing wife and now caregiver, Tina. We have two kids ages 22 and 20. I am a psychosomatic medicine physician and did clinical practice and research in both the U.S. and Canada. I joined the pharmaceutical industry in 2004 and had a 15-year career in clinical drug development before I retired due to ALS. My last job was the vice president of U.S. and Puerto Rico Medical Affairs where I led a team of roughly 400 scientists and physicians. I was late to a meeting in August 2014 and attempted to run to my car. I couldn’t get my right leg to move fast and I felt like I was going to trip. At that moment, I called my wife and said “I think I have ALS” and that’s where my journey with this illness begins. I was formally diagnosed on December 17th, 2015 — and I am still here and thriving.


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