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In memory of Michael Juhl

someone we've lost to ALS

Texas


It began with a silly misstep and fall. Then another, followed by twitches and then the terrible diagnosis.

It began with a silly misstep and fall. Then another, followed by twitches and then the terrible diagnosis. August 19, 2019 will forever be remembered as a horrible day along with December 14, 2020, the day he passed away.

My beloved husband, who was full and life, demonstrative, funny, creative, smart and loving was killed by a disease too rare to warrant any money by Big Pharma to research it. If veterans are twice as likely to get it, shouldn’t our military medical services take up the fight? I was his sole caregiver from day one and I did it with honor as his wife. I gave him his last bath, his last meal, his last hug, his last kiss and his last dose of morphine. He was the victim of a broken system. Shame on you Washington.


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