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I am Maija Flanagan

a family member of someone we've lost to ALS

California


While she definitely had her bad days with the disease, she was always optimistic about a cure. I think that she would want to spread the words of hope, tenacity and courage which are needed with living and curing this disease.

Susan Garcia was my sister and passed away from ALS in June 2021. She was 58 years old. She was diagnosed in October 2019 by a neurologist (who was not an ALS specialist) and gave her a prognosis of 18-24 months to live. After that visit, Sue sought out getting medical treatment and an ALS specialist. Her specialist did not verify the original life expectancy prognosis and instead chose to not give a specific timeline.

Besides my sister’s clinical help, I think that her humor and faith were her salvation, along with a supportive husband and friends. Sue was also extremely smart (NASA smart) and did research on whatever she could to find information about treatments and therapies. She was so close to getting those medications, but unfortunately she ran out of time. While she definitely had her bad days with the disease, she was always optimistic about a cure. I think that she would want to spread the words of hope, tenacity and courage which are needed with living and curing this disease.


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