fbpx

I am Len Harris

a family member of someone living with ALS,
caring for someone living with ALS

Texas


Life is still fun but that’s only because we choose to make it that way.

I met the love of my life in 2015. I finally asked her to marry me in 2018. We were married on my late mother’s birthday in October of 2019. Life was great with the exception of some unexplained weakness in her left leg. After a full year of doctors’ appointments during the height of the pandemic in October of 2020 (a measly 1 year after our wedding day), we got the most devastating news imaginable. We were told she had sporadic ALS. To say we were devastated is a huge understatement! All of the plans for retirement, grandkids, traveling the country immediately took a backseat to simply hoping we get the 2-5 year mortality estimation. Life is still fun but that’s only because we choose to make it that way. We are praying for a miracle.

 


More stories

See all stories

Back to Top

Join us for the 2024 Community Summit!

Join us in Washington DC from May 29th - June 2nd for the 3rd annual ALS Awareness Month flag display and inaugural Community Summit.

Learn more! Continue to the site