I am Karen Page

a family member of someone we've lost to ALS,
an ALS healthcare professional,
someone who cared for a person we've lost to ALS

Massachusetts


He always said he was the luckiest man alive, I think I was the lucky one to have the love of my life and to be able to care for him at home.

My husband Bob fought Stage 4 metastatic melanoma for 4 years only to be diagnosed with Bulbar onset ALS shortly after he finished his treatments. There really was no break for him. He lost his voice first and slowly lost the ability to walk. We went to Punta Cana right before the height of Covid with our best friends, he had the best time, it is and was his favorite place. 7 days was glorious, he tired easily and by the end of the week he was exhausted. 1 week to the day we were home, he had a heart attack, 100 percent blocked and because he could not swallow his meds he then had a stemi heart attack. A feeding tube was placed and it was a little better for him with hydration and meds. He loved to sit on our porch with his pooch and myself, his friends visited weekly, some daily. He would write that he was a lucky man to be able to stay home with us. I cared for him through all of his sicknesses and he wrote to me on a daily basis how lucky he was to have me and whatever did he do to deserve me, he was always so grateful. He pushed through and fought the fight. He held on for the holidays and passed Jan 4, 2021, 4 days before my birthday. He always said he was the luckiest man alive, I think I was the lucky one to have the love of my life and to be able to care for him at home. He was a good husband, dad, brother and son. He will be missed forever. ALS is a brutal, devastating, debilitating disease. It is hard to watch your loved one lose a bit of himself everyday. I pray for everyone who has lost someone and everyone that still fights today.


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