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I am Jane Dignam

a family member of someone living with ALS

California


My son was a semi-pro college and ODP soccer coach who in 2018 collapsed on the field because his legs failed him.

My son was a semi-pro college and ODP soccer coach who in 2018 collapsed on the field because his legs failed him. July of 2019 he was diagnosed with MS after MRI revealed white matter on the brain, failing speech, failing mobility.

After losing his home, job, car, he subsequently moved home in December of 2019, and we applied for disability which took one year and 4 months to begin receiving. Still being in a rapidly physically declining state in March of 2020, various medications were suggested with continued decline. From slowing walking unassisted in April 2020, he was totally dependent on a Walker by July 2020.

In November 2020 we went to a wheelchair with limited mobility. In March 2021 additional clinicians became involved in his disease and in March, 2021, THREE YEARS after his onset, he was diagnosed with ALS. We are now, April 19, 2021, prayerfully awaiting a bone marrow transplant.


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