I am Barbara Kipp
a friend of someone living with ALS
Despite her diagnosis, she has shown incredible spirit and drive.
My good friend, Becky, was diagnosed with ALS 6 months ago. She is young (57) and was living an active life as a musician, music teacher, wife and mother. She enjoyed running, traveling, outdoors and playing the clarinet.
She can no longer run or play the clarinet, two of the activities most important to her. Despite her diagnosis, she has shown incredible spirit and drive, engaging in activities and garnering others to help push for FDA approval of promising therapies such as AMX0035, legislative action on the House and Senate bills related to ALS and raising awareness.
I can’t imagine how she does it; I am in absolute awe of her and so very sad for her diagnosis. If we can send people to the moon, and rockets to Mars, why can’t we move to more quickly provide promise to people like Becky who don’t have the luxury of time to wait? Please, Congress and FDA, HELP!