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Meet Our Marketing and Content Lead: Kathleen Rooney

May 10, 2019  -  Kathleen Rooney

I AM ALS.

What do those three words mean to you?

Before I started the position as the Marketing and Content Lead for this organization a month and a half ago I had no answer. In fact, like so many, I had never even asked that question. But today, I have an answer.

I learned from working with Steve and the I AM ALS Community Outreach Committee, Sandy and the I AM ALS Clinical Trials Committee, Christa and the I AM ALS Legislative Affairs Committee, and the amazing members of the Community Advisory Council.

I learned very quickly that this community embodies hope. The kind that drives real progress and engrains a whole lot of grit into the building of a movement that will make this thing successful.

I learned that to say I AM ALS you have to understand the hard truth that this disease leaves families broken and deprives one of the everyday freedoms I myself take for granted. At the same time, however, with my and your help stand at the precipice of one of the biggest medical breakthroughs of this century: finally defeating ALS.

So why am I sharing this with you? Because I was brought on board to help create a movement.

My entire career thus far has utilized the power of communications to bring disparate communities together in order to enact change. It started working with the military and their surrounding communities to drive technological advancement.  It then transitioned to a startup that brought non-profits, technology companies, lawyers, and beyond under one roof to understand how each could benefit from approaching their challenges from a different point of view. That’s what I hope to do with this movement.

At I AM ALS, I want to build an organization that both connects patients, caregivers, and current advocates to the resources needed to beat this thing and brings in thousands who have never heard of ALS to learn, connect, and fight with you. An organization that ensures we are a force of millions running towards cures as fast as we can and that empowers new advocates to claim to others what I share with you all now; I AM ALS.

In these last few months I’ve seen that you each have a story to tell and it’s a powerful one. It’s one that when you start talking, people shut up and listen. So that’s what I’m going to do. I’m going to listen, learn, and build.

I’m incredibly honored to now sit in this position and do whatever I can to amplify your voices and to help bring thousands more into this fight.

Kathleen

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