In a Race Against Terminal Illness, Former Obama Staffer With and His Wife Find New HopeJanuary 24, 2020
Brian Wallach wasn’t supposed to live to see his younger daughter’s first birthday.
Diagnosed with amyotrophic lateral sclerosis (ALS), a terminal disease with no cure, doctors told him in 2017 that he might have six months to live.
Today, he’s focused on being there for his daughter’s future firsts: kindergarten drop-off, middle school dance, wedding day.
More than two years after his diagnosis, he has been lucky, he said, to experience relatively limited progression of his disease. After some balance issues, the Kenilworth resident now uses a cane — or, as he is careful to specify, a “cool walking stick” — to get around.
When Wallach was diagnosed, neither he nor his wife, Sandra Abrevaya, knew much about ALS, a neurodegenerative disease that affects nerve cells in the brain and the spinal cord, eventually paralyzing even the body’s ability to breathe.