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Community Teams


Clinical Trials Team

The Clinical Trials Team works directly with researchers, government agencies and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. They collect and distribute information regarding clinical trials and the latest research to the ALS community, through ALS Signal. Read more and reach out to get involved.

Community Outreach Team

The Community Outreach Team engages, educates and empowers ourselves and others for the purpose of creating better care, treatments and cures for ALS. Read more and reach out to get involved.

Familial ALS Team

The Familial ALS Team raises awareness of familial ALS and empowers, supports and advocates for potential and actual ALS gene holders and their families. Read more and reach out to get involved.

Legislative Affairs Team

The Legislative Affairs Team engages and creates more advocates in order to secure federal funding and change public policy to accelerate ALS treatments and cures and support those living with ALS and their loved ones. Read more and reach out to get involved.

Lou Gehrig Day Team

The Lou Gehrig Day Team raises awareness of ALS, Lou Gehrig Day, and Lou’s legacy, and brings together the ALS community for an incredible day every June. Read more and reach out to get involved.

Thank You Squad

The Thank You Squad cultivates relationships and adds a personalized touch through individual donor outreach. Read more and reach out to get involved.

The Many Shades of ALS

The Many Shades of ALS Community Team brings attention to and provides resources for the mental, physical, and social health of people of color living with and impacted by ALS. Read more and reach out to get involved.

The Write Stuff

The Write Stuff team is a writers’ group that empowers and embraces all perspectives as they share their stories through writing, with the intent of educating others and raising awareness of ALS both within and outside of the ALS community. Read more and reach out to get involved.

Veterans Team

The Veterans Team raises awareness for veteran-specific ALS issues and connects veterans with resources to improve their quality of ALS care. Read more and reach out to get involved.

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Join us for the 2024 Community Summit!

Join us in Washington DC from May 29th - June 2nd for the 3rd annual ALS Awareness Month flag display and inaugural Community Summit.

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