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ACT for ALS

H.R. 3537/S. 1813


The Accelerating Access to Critical Therapies (ACT) for ALS Act will create real pathways to provide faster and broader access to therapies for those living with ALS and improved infrastructure for neurodegenerative disease drug development.


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ACT for ALS is the legislation the ALS community needs to make real, quick progress toward treatments and cures.

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About the legislation

Status
Introduced

Proposed on
May 18, 2021

ACT for ALS will create an infrastructure to fund early access to promising therapies discovered through clinical trials for patients suffering from fast-progressing neurodegenerative and terminal diseases like ALS.

In addition, the legislation will invest in neurodegenerative disease research through a new Food and Drug Administration (FDA) Rare Neurodegenerative Disease Grant Program and establish a Department of Health and Human Services (HHS) Public-Private Partnership for Neurodegenerative Disease between the National Institutes of Health (NIH), the FDA and one or more eligible entities. This partnership will support and accelerate the development and review of drugs for patients with ALS and other neurodegenerative diseases.

Sponsors (2)

Rep. Quigley, Mike (D-IL)
Sen. Coons, Christopher (D-DE)

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