Encyclopedia of ALS Organizations
Here, you will find the litany of ALS organizations in the United States ready to provide the support and resources you need for your fight.
The ALS community is bursting with groups here to help you. One of the hardest things to do is to actually find them. So we’ve gone ahead and started doing that for you.
In building this encyclopedia we have grouped the organizations by the type of service they provide.
Also, we have provided links to each organization’s website. We hope you will click on the ones that speak to you, explore their sites, and call them to see if they can help in your fight. If you do, the links will take you from I AM ALS directly to each group’s website.
We hope this encyclopedia is helpful and that you will check back in regularly as we will be upgrading soon to allow you to search for organizations by zip code, discover all the specific programs offered by each organization, and connect with other patients directly. Also, if you see organizations missing, send us an email and we will reach out to them to see if we can add them in.
Patient and Family Home Care
Compassionate Care ALS
Les Turner ALS Foundation (Chicago Area)
Joe Martin ALS Foundation (The Carolinas)
Joan Dancy & pALS (New Jersey)
ALS Hope Foundation (Philadelphia Area)
Information for Patients & Families About Living with ALS
Resources for Veterans
Resources for Children of ALS Community
ALS Assisted Living Facilities
ALS Online Support Groups and Patient Forums
ALS In-Person Support Groups
Funding and Conducting ALS Research
ALS Therapy Development Institute
ALS Finding a Cure
ALS Never Surrender Foundation
Les Turner ALS Foundation
ALS A Life Story Foundation
National Institutes of Health
Department of Defense
Muscular Dystrophy Association
ALS Awareness by Patients and Caregivers