Community Organizing Associate

Title: Community Organizing Associate 

Reports to: Community Organizing and Outreach Lead

Location: Washington, DC 

About I AM ALS 

I AM ALS is a patient-centric movement revolutionizing how to end disease. The nonprofit provides critical support and resources to people with ALS, caregivers and loved ones. We empower advocates to raise awareness and lead the movement against ALS in driving the development of cures. Founded in 2019 by husband and wife team Brian Wallach and Sandra Abrevaya, I AM ALS was born out of their desire to rewrite the ALS story for Brian and the tens of thousands of other people with ALS. 

ALS, also known as Lou Gehrig’s disease, is currently a fatal disease with no cures. It attacks cells in the body that control movement and gives most patients no more than five years to live. It makes the brain stop talking to the muscles, causing increased paralysis over time. Ultimately, people with ALS become prisoners within their own bodies, unable to eat, breathe, or move on their own. Their mind, however, often remains sharp so they are aware of what’s happening to them. Working on “the ALS clock,” I AM ALS and the advocate community bring an incredible amount of passion and urgency to ending this relentless disease. 

The Opportunity 

The Community Organizing Associate will assist with the welcome and ongoing initiatives of the community of advocates and their shared team goals. This is a unique opportunity to work hand in hand with those directly impacted by ALS to drive forward progress on legislative efforts, veterans affairs and a host of other community-centric projects that have a direct impact on the current and future landscape of ALS. 


You are eager to apply your organizing skills to drive forward projects the community ideates. You have a background in organizing efforts or have worked to drive action and change through people-centered initiatives. You are creative in ways to do outreach to new advocates and innovative in how to keep the community engaged. You are dedicated to ensuring each member of the community is engaged and equipped with the education, training, skills and tools needed to further their advocacy and engagement. No task is too small and no project too big for you to passionately drive forward shared goals of the community. 


The Community Organizing Associate will assist with the outreach and development of community members, including the following:  

  • Assist with building and nurturing relationships with community advocates. 
  • Create content for advocacy communications and training materials. Coordinate with the Communications and Organizing team to ensure sufficient resources exist to equip volunteers for high-impact advocacy. Manage all volunteer resource production and contribute to content as necessary.
  • Develop, implement and lead community training series and collateral designed to equip and deepen the understanding of the role of effective advocacy in I AM ALS’ work for community advocates. 
  • Measure and evaluate annual advocate engagement and effectiveness, ensuring strategic goals are met.
  • Work collaboratively with the larger I AM ALS group when assigned to work as a member of a team.


The ideal candidate will possess some combination of the following qualifications: 

  • 2-4 years of experience in advocacy, grassroots organizing or related field 
  • Demonstrated experience in building collaborative action 
  • Excellent written and verbal communication skills 
  • Ability to tackle multiple projects with specific deadlines 
  • Accomplishes tasks thoroughly, showing concern for all the areas involved no matter how small, at the appropriate level for the task.
  • Presents ideas articulately. Uses effective listening skills to promote the free flow of information. Shows consistency between words and actions. Works collaboratively with others to promote consistent communication across the department.
  • Communicates and interacts effectively with people from other cultures, religions and geographies; respects and adapts to other cultures and seeks opportunities to enhance relationships. 
  • Demonstrated strength in the following areas: 
    • Collaborative teammate, willingness to contribute flexibility and creativity in a startup environment 
    • Ability to work independently and productively in a sometimes virtual work environment 
    • Problem solver, able to find creative solutions when challenges arise 
    • Willingness to give and receive feedback, open to individual growth 
    • Comfortable working in a fast-paced environment and navigating changes and ambiguity 

Travel Requirements 

  • This position is based in Washington, DC with travel up to 10% for meetings and events. 

Salary and Benefits 

  • Position is full time/exempt with competitive salary and benefits package including health insurance offering. 
  • Salary range for this role is $40,000-50,000 depending on the candidate’s level of experience. 


If you believe you can deliver on these responsibilities, we encourage you to apply. To apply, please submit a one-page cover letter and resume to [email protected]. Please include “Community Organizing Associate” in the subject line.

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