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Show who ALS impacts through the Every Community map


To be seen and known and loved is the reason we’re here. If you can’t see me, then I feel like you can’t hear me. Those touched by ALS are legacies with incredible stories. ALS is defined as a rare fatal disease. Let’s show America how much it impacts our community. Share your story and give a face to ALS in every Congressional district in this country. 

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Add Your Name and Share Your Story

More than 2,700 people affected by ALS impacting every congressional district

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  • I am impacted by ALS
  • I am living with ALS
  • Someone we've lost to ALS
  • Veteran

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Join us for the 2024 Community Summit!

Join us in Washington DC from May 29th - June 2nd for the 3rd annual ALS Awareness Month flag display and inaugural Community Summit.

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