Let’s Talk About It: A Mental Health Series

Join Let’s Talk About it: A Mental Health Series, which includes community conversations hosted by I AM ALS’ newly formed Many Shades of ALS Community Team. This team brings attention to and provides resources for the mental, physical and social health of people of color living with and impacted by ALS. These community conversations will be centered on how ALS impacts mental and emotional health and wellbeing in the lives of people living with and impacted by ALS. 

The first conversation will take place on Wednesday September 29, 2021 at 12 p.m. ET.

Our opening discussion will focus on the impact of an initial ALS diagnosis. Topics might include: 

  • What did it feel like hearing you have ALS (Lou Gehrig Disease), a disease with no cures or treatments that reverse or stop symptom development?
  • What did it feel like to hear that you likely had 2-5 years left to live?
  • How did the unending medical appointments and tests impact your mental and emotional wellbeing?
  • Getting an ALS diagnosis can take up to 12-15 months. How did you process the initial diagnosis after living with uncertainty for so long?
  • How did it feel to come home after being diagnosed? 
  • For caregivers, what did it feel like to hear that your loved one had ALS?
  • How did your mental and emotional wellbeing impact your approach to your healthcare?

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