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Her ALS Story Fundraiser


Her ALS Story represents a growing group of women diagnosed with ALS before their 35th birthdays. To challenge the stereotype that ALS is a disease that impacts older white men, they foster an open dialogue about their declining health and the impacts of this devastating disease on young women. They cultivate relationships with female-centric media outlets and with female lawmakers with the goals of spreading awareness of the impact of this disease on young women. Their overarching goal is to improve current insurance and Medicare standards and introduce legislation to speed up the drug pipeline. Together with I AM ALS, they raise money for the pursuit of rational, unbiased, supercharged ALS research and direct support to those impacted by ALS to ultimately end this devastating disease.

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