Update your congresspeople about the FDA Congressional hearing
Advocates asked for a Congressional hearing with the FDA and Congress listened. On July 29, 2021 the Energy and Commerce Health Subcommittee held “The Path Forward: Advancing Treatments and Cures for Neurodegenerative Diseases.”
No senators and not all representatives were able to attend. So let’s make sure they hear about the struggles of people living with ALS to get access to therapies and the FDA’s lack of adherence to its own Amyotrophic Lateral Sclerosis: Developing Drugs for Treatment Guidance for Industry Guidance for Industry.
Fill out this action form to send four videos of the Congressional hearing to your senators and representative.